July 11, 2024 Dr. Victoria Werth decided to focus her career on researching and treating cutaneous (skin) lupus erythematosus because she saw a major need that she could help fill. Her story is especially appropriate this July during Ultraviolet Safety Month – as ultraviolet sun rays can trigger flares for people with cutaneous and/or systemic […] READ MORE
July 1, 2024 Last week, the U.S. House of Representatives passed the Fiscal Year 2025 Defense Appropriations bill. This bill includes $10 million for the Lupus Research Program, which awards grants to promising researchers around the world seeking to improve therapeutics and hopefully discover a cure for lupus. This is the same funding level that […] READ MORE
SUMMIT, N.J., June 24, 2024 – The Lupus Research Alliance is proud to partner with former Pittsburgh Steelers and New York Jets player, Super Bowl Champion, and current FoxSport1 co-host Willie Colon on the 10th Annual Willie Colon Golf Outing crafted by Tito’s Handmade Vodka. The sold-out outing raised $450,000 in honor of Mr. Colon’s late […] READ MORE
San Francisco, CA- June 20. The Lupus Research Alliance (LRA) announced the recipients of the 2024 Lupus Insight Prize to Marko Radic, Ph.D., The University of Tennessee Health Science Center, and Georg Schett, M.D., Friedrich-Alexander-Universität Erlangen-Nürnberg, for their groundbreaking discoveries in utilizing CAR T cell therapy to potentially revolutionize lupus treatment. Drs. Radic and Schett […] READ MORE
Progress Shared and Future Course Charted The Lupus Research Alliance (LRA) is pleased to report that the Lupus Accelerating Breakthroughs Consortium (Lupus ABC) held its second annual meeting in April in Bethesda, Maryland to share its substantial progress over the first year and chart future directions. Lupus ABC is a first-of-its-kind public-private partnership, uniting individuals […] READ MORE
Known around lupus circles as Dan the Man, Nandan (Dan) Baruah is an advocate for all people with lupus. But he is especially focused on helping other men living with what is often considered a women’s disease. As Dan reflects on Men’s Health Month and Father’s Day, he has much to share about coping as […] READ MORE
June 5, 2024 The Lupus Research Alliance (LRA) expresses deep appreciation to the renowned singer and songwriter Halsey on sharing two powerful Instagram posts (June 4 and June 5) about their diagnosis of systemic lupus erythematosus (SLE) and a rare T-cell lymphoproliferative disorder. Halsey released yesterday on Instagram a new song, The End, expressing their challenges and tagging […] READ MORE
May 31, 2024 For centuries writers have described May as a time budding with promise. How apt that it is also when the world recognizes Lupus Awareness Month. With 31 days of May behind us, we celebrate the community that has banded together to make a difference. We appreciate all your amazing contributions throughout the […] READ MORE
New York, NY, May 23. The Lupus Research Alliance (LRA) is proud to announce that nine international researchers are the recipients of this year’s Lupus Innovation Award (LIA). They will conduct innovative research to uncover the underlying mechanisms and identify novel targets and pathways that could be harnessed to predict, monitor, and treat lupus, a […] READ MORE
May 9, 2024 Molly McCabe was going to be an opera star, using the gift of a beautiful voice to inspire audiences around the globe. That was before lupus attacked and focused most on the organ that makes singing possible– her lungs. So began two years of feeling sorry for herself, spending her time on […] READ MORE
May 1, 2024 As part of Lupus Awareness Month, May 1 has been declared “Lupus Call to Action Day” by the National Minority Health Association (NMHA) and members of the lupus community. Kicking off at NYU Langone Health in New York City, the high-profile platform is designed to drive awareness and enact change to improve […] READ MORE
EAST RUTHERFORD, NEW JERSEY. May 1, 2024. Today, nearly 1,500 supporters plan to help tackle lupus at MetLife Stadium for the Lupus Research Alliance (LRA) 2024 New Jersey Walk with Us to Cure Lupus. Together, the passionate group of people with lupus and their friends and family expect to raise nearly $500,000 for lupus research […] READ MORE
