October 7, 2021

In recognition of Hispanic Heritage Month, we are sharing a blog post from Latina professional Priscilla Toral, LCSW at Hospital for Special Surgery for managing as a male with lupus. The Hispanic/Latino community are among those at higher risk for lupus. Lupus is traditionally known as a woman’s disease, because it affects women 9 times more than it affects men. Often, men do not see themselves as people who develop this disease. Social, cultural and traditional masculine beliefs of what it means to be a male may make it even more challenging to cope with lupus.

From Priscilla Toral, LCSW:

Lupus Isn’t Only a “Women’s Disease”: Coping Tips for Men with Lupus

Communication is a vital part of coping with the many challenges you may face as a male with lupus. Being aware of what you need and how to ask for support and resources is important to living a healthy life with lupus. Here are some helpful suggestions that may provide help for those looking for support:

• Lupus does not define you or your level of masculinity. Although lupus might make it challenging to engage in rigorous activity, talk with your doctor about your level of ability and decide what activities may be helpful to include in your daily routine. Your doctor may suggest your current activity in moderation or help you to incorporate new activities you may enjoy.
• Communication with your doctor is key to the successful management of your condition. Prepare for your appointments by keeping a log of your symptoms and writing down your questions. Keeping a list of your questions and concerns will help to organize your thoughts, ease concerns related to your condition and ensure you get the most out of your medical visits. Keep important contact information at your fingertips, such as your doctor’s office number, pharmacy and insurance information.
• Lupus can be very unpredictable and invisible. You may look fine to others but may be flaring or feeling very ill. It’s important to stay informed and educated regarding your symptoms and how they impact you. This will help you to share appropriate information with your health care team and loved ones to ensure your needs are being met.
• Males, it’s ok to express the emotional impact that lupus has on your life. Support can come in many forms and often sharing your thoughts with those with similar experiences is helpful. Reach out to your support system, share at your level of comfort and connect with other males. Talking to a mental health provider may also be helpful in your lupus management.
• Seek help and support. HSS offers through the Social Work Programs Department  a number of free and national support and education services including monthly SLE Workshops, LupusLine®, LANtern® (LupusAsian Network)® and Charla de Lupus (Lupus Chat)®.

Hospital for Special Surgery (HSS) is a highly active member of LRA’s LuCIN network of academic research centers managed by its affiliate Lupus Therapeutics.